Publications
Alpha-1-to-One magazine
Alpha-1-to-One magazine is a full-color magazine packed with practical advice, personal stories and news for people touched by Alpha-1 Antitrypsin Deficiency. The current issue features Edwin Silverman, MD, PhD, co-principal investigator for the COPDGene study, which aims to find the genes underlying lung diseases, and then to find specific treatments. The magazine also introduces “The Million Dollar Match,” a first-ever opportunity to have all research donations matched, up to a million dollars. There’s also a story on Alpha playwright Victoria Joseph and a follow-up on several of the Alphas who’ve appeared in the magazine in recent years. The magazine is free, mailed to subscribers three times a year. Click below to receive the magazine and join our mailing list. You will receive occasional mailings from the Alpha-1 Foundation. The Foundation mailing list is confidential and never shared with outside organizations.
Subscribe free to Alpha-1-To-One
Educational and research brochures
You can download our educational and research brochures below on your computer and print them out if you like. You may also order any of our publications free by clicking on the link below. To order any of our educational publications, click here: Request Publications
“State of the Cure” Report
The Alpha-1 Foundation’s State of the Cure document describes the progress the Foundation has made toward fulfilling its mission since its founding in 1995, and the challenges now facing the Foundation and the Alpha-1 Community. The State of the Cure provides clear, detailed explanations of the current state of research and therapeutic development strategies.
The mission of the Foundation is to provide the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. Finding a cure is the essential reason for the Foundation’s existence, so State of the Cure became the title for this 2008 report to the community.
To download a copy, Click Here: 
All publications are in PDF format
Education Brochures:
- 1. What is Alpha-1 Antitrypsin Deficiency? (229kb)
- 2. What does it mean to be an Alpha-1 Carrier? (292kb)
- 3. The Liver and Alpha-1 (241kb)
- 4. Issues in End of Life Care (214kb)
- 5. Guide to the Recently Diagnosed (745kb)
Research Brochures:
- 1. Taking Part in Alpha-1 Research (219kb)
- 2. Alpha-1 Foundation DNA and Tissue Bank at the University of Florida (186kb)
- 3. Research Registry Brochure (2mb)
- 4. Research Registry Enrollment Questionnaire (189kb)
- 5. Alpha-1 Coded Testing (Act) Study (1mb)
Spanish Material:
- 1. ¿Qué es la Deficiencia Alfa-1 Antitripsina? (849kb)
- 2. ¿Qué significa ser portador de Alfa-1? (691kb)
- 3. El hígado y Alfa-1 (776kb)
- 4. Aspectos sobre la atención al final de la vida (602kb)
For Healthcare Providers:
- 1. Healthcare Providers Guide (544kb)
