Publications
The links below provide you with easy access to our patient education materials. Check this page periodically for our most recent publications. We would also like to keep you informed about Alpha-1 Antitrypsin Deficiency and the on-going research conducted by the Alpha-1 Foundation. Therefore we encourage you to register with our confidential mailing list, which is never shared with outside organizations. In doing so, you will receive our four-color magazine, Alpha-1-to-One, approximately three times per year. Join our list
All publications are in PDF format
Education Brochures:
- 1. What is Alpha-1 Antitrypsin Deficiency? (745kb)
- 2. What does it mean to be an Alpha-1 Carrier? (283kb)
- 3. The Liver and Alpha-1 (12mb)
- 4. Issues in End of Life Care (289kb)
- 5. Guide to the Recently Diagnosed (758kb)
Research Brochures:
- 1. Taking Part in Alpha-1 Research (482kb)
- 2. Alpha-1 Foundation DNA and Tissue Bank at the University of Florida (945kb)
- 3. Research Registry Brochure (1mb)
- 4. Research Registry Enrollment Questionnaire (4mb)
- 5. Alpha-1 Coded Testing (Act) Study (438kb)
Spanish Material:
- 1. ¿Qué es la Deficiencia Alfa-1 Antitripsina? (849kb)
- 2. ¿Qué significa ser portador de Alfa-1? (691kb)
- 3. El hígado y Alfa-1 (776kb)
- 4. Aspectos sobre la atención al final de la vida (602kb)
For Healthcare Providers:
- 1. Healthcare Providers Guide (1,012kb)
